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Health Communicators SIG: Ethical Patient Storytelling

  • 6:00 pm - 7:30 pm
  • BC Patient Safety and Quality Council,#201-750 West Pender St. Vancouver, BC V6C 2T7
  • Monday, June 3, 2019

Ethical Patient Storytelling: Principled writing practice for sharing stories of diverse patients and clients, including First Nations clients, mental health and substance use patients, residents with dementia, minors in our care, patients in palliative care, and vulnerable and at-risk populations in our communities.

Please join us for a lively roundtable discussion on the ethics and professional principles of telling complex patient stories while balancing their right to privacy with their interest in public expression.

We will consider issues such as: When can a patient truly consent to a photo and interview? How do you write sensitively about patients with vastly different backgrounds and life experiences? What is the shelf-life of a story on a patient? What happens if their condition changes over time? Where is the line between public health education and exploitation?
Please come prepared to share stories of your own ethical storytelling dilemmas and solutions.

We will discuss:

  • Avoiding victimizing language in favour of person-centered language
  • Concepts of informed consent, best practices using consent forms
  • Challenges and successes in presenting patient partner stories
  • Options for patients to self-generate stories in ways that really work
  • Stewardship of stories and when and how to update for accuracy
  • Preparing your source, forging relationship trust, writing as partners
  • How to negotiate inclusion of sensitive material and health detail
  • Tools and resources for ethical storytelling

Regular pricing:

Members: Free
Non-Members: $20

 

Need help registering? Call the IABC/BC registration line at 604-878-1320 or email our admin team at: iabcbc@vancouveroffice.com

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